Cauda Equina Syndrome

 

Cauda Equina Syndrome is a medical emergency. It is advised that surgery should occur within 48hrs of the onset of symptoms. Surgery at this point is not optional, it is critical.

From when we are born to when we are fully grown, the length of our spinal chord remains the same. As we grow, our spine grows with us, and out of the spinal chord grow the nerves of the Cauda Equina. The nerves delta out through either side of the individual levels of the lumbar spine and sacrum (the plate of bone that connects the spine and the pelvis). In most people, the spinal chord ends around the second lumbar vertebra.

Translated, Cauda Equina means horses tail – just as its appearance suggests.

When foreign matter obstructs the spinal canal through which the Cauda Equina passes, a compression can occur. Depending on the cause of the compression, symptoms start much like familiar lumbar back pain, but soon become more aggressive.

There are several possible causes of Cauda Equina Syndrome.

1) Disc Bulges or Herniated Discs – discs herniate, bulge, rupture and repair themselves fairly well on their own. This is why often, surgery is not necessary in relation to disc problems. Of Herniated Discs in the Lumbar Spine, only from 1 to 15% will potentially lead to compression of the Cauda Equina.

2) Spinal Stenosis – a narrowing of the spinal canal through which the Cauda Equina passes, can also lead to compression.

3) Spondylolisthesis – this is the sliding of one vertebra of the spine on top of or below another. This is generally more prominent in young people, with spines that are still developing and growing. This can also occur as a result of a severe impact incident.

4) Other pathologies, such as tumors, and even pregnancy, can also result in a compression.

It is said that the condition becomes critical at 48hrs, and if the effected nerves are not decompressed, nerve damage is increasingly likely to become irreversible. There is a debate as to whether it is the 48hr time frame that is of most importance, or the functionability of the bladder at the time of decompression, but the two seem to go hand in hand really, the longer the compression, the more likely the damage.

Below is a brief description of the symptoms of compression through the lumbar spine and sacrum.

L2 ~ Compression of the nerve roots at the second lumbar vertebra presents as pain in the upper thigh. The quad muscles may become weakened.

L3 ~ Compression at the third lumbar vertebra presents as pain in the lower thigh. Reflexes become restricted at the knee cap.

L4 ~ At the fourth vertebra of the lumbar spine compression presents as pain in the shin and knee.

L5 ~ Compression of the fifth lumbar vertebra presents as pain in the hamstrings and gluteal muscles, as well as limited dorsiflexion of the foot.

S1 – S5 ~ Compression in the sacrum presents as pain / numbness in the saddle area.

 

The Symptoms

If you have suffered from lower back pain for a long period of time (chronic pain), you will be familiar with how it feels. Tight, weak, tired, tense, burning. We all have different words for describing our pain. When lower back pain moves from chronic to acute words like stabbing, excruciating, immobilizing, debilitating come to mind. Often long term back pain sufferers will move between chronic and acute phases. Sometimes we can identify the causes of these acute flare ups –  long-haul flights, unsupportive beds, or beds that are too rigid, lengthy car journeys, other long periods of stillness like couch slouching, even just bending over to pick something up. Likewise, quick movements during sports and more vigorous actions can also lead to acute flare ups. And sometimes, there just seems to be no reason at all. Personally, I tend to think it is more a combination of all things that lead to such events. Even stress and emotions come into play here.

Low back pain and Sciatica are symptoms of Cauda Equina Syndrome. But, most people who have Low Back Pain or Sciatica will not end up with Cauda Equina Syndrome. If Back Pain and Sciatica are the start of the line,  Cauda Equina Syndrome is the end of that line. If sciatica is not a result of Piriformis Syndrome – a chronic tightness of the muscles around the hip and through which in most people the Sciatic nerve passes – it is most likely to be the result of an issue within the Lumbar Spine. The question is, how do you know when something more serious is at play? How do you know when it is time to get to the Emergency Room?

Real symptoms of Cauda Equina Syndrome start to display in the Perineal or Saddle regions. Known as Saddle Anesthesia, the feeling is at first of pins and needles, leading to a more intense but at the same time dull feeling, like when a local anesthetic is used. This can also spread out into the Gluteal muscles, and down the back of the legs into the Hamstrings. Other sensations could be of hot or cold temperature changes on the skin, a feeling like someone is pouring warm or cold water down the backs of the legs.

Bowel and bladder function are a definite red flag. Changes here should be monitored closely. Bowel function is potentially harder to recognise as movements might occur at a frequency of once a day or thereabouts. Unless you are regular as clockwork, this could prove hard to monitor. Bladder function is a much clearer indicator.  Urinary changes include retention, difficulty initiating flow, and decreased sensation of movement of urine through the urethra. Again, I recommend going immediately to hospital if any changes in bladder function are noticed.

Another symptom that I read of, but experienced 5 days previous to surgery, was dysfunction of the effected leg. My left leg would simply give out from underneath, and I would fall half way to the ground, as though I didn’t even have a left leg. Although this is noted as a symptom, I do not believe that I had a compression for 5 days.

Because of the fact that Cauda Equina Syndrome goes critical at 48 hrs, I can not emphasise enough the importance of going to Hospital at the onset of these symptoms. After this 48hr period, the consequences of the compression will most likely become permanent, and there will be no Bladder or Bowel function capabilities left, leading to permanent use of a catheter and colostomy, and for the guys, this could also mean permanent sexual dysfunction.

 

The Surgery

The surgery is comprised of a few parts. A Laminectomy must first be performed. The Lamina of the effected vertebral bone is removed, giving access to the spinal canal and the disc that has herniated and caused the compression.

A Discectomy is then performed. The bulging part of the disc is removed, and the gel from the disc is scraped out, so as to minimise chances of recurrence. This effectively decompresses the Cauda Equina.

Several stitches and a band aid to finish.

Back to Hospital

7 Responses to Cauda Equina Syndrome

  1. Anne marie smith says:

    For years I suffered from dreadful lower back pain. I like many others controlled the pain with paracetamol and ibuprofen. Attended a chiropractic who cracked my back and said my posture was to blame. I started to noticed changes in my symptoms 6 months before my surgery, I started to experience syatica and 6 weeks before surgery I had an mri which showed up my problem on l5 and s1.
    I was coping on very strong pain meds, just! Woke up early one morning went for a shower and my left leg gave way. Loss of sensation and I had no feeling from my hip down.
    4 weeks later after experiencing the worst pain imaginable I was rushed into hospital pleading for help. 6 hrs after arriving at the hospital following neurological checks. What felt like the whole surgical team appeared at my bed side in a panic. I was taken to surgery where I was told I may end up paralysed due to caudia equina. When I came round from the surgery I was pain free ! But this is when things struck me. I had no feeling in my saddle area and I couldn’t walk. To cut a long story short I was determined that I wasn’t going to leave hospital in a chair plus I had 3 months before I got married.
    I persevered with physio and exercise slowly the nerves started to function. I got my walking back and before long I was back to work. I was left with a dense left foot and a leg that felt half dead but I had won this battle.
    Unfortunately as I write this I have had to go back to my gp this week due to chronic onset of pain in my left calve and a feeling that my knee is about to buckle under me.
    Been referred back to my neurological surgeon to see if it is a reoccurrence of my caudia equina or symptoms relating to it. To say I am scared at what the outcome will be is an understatement. Back on strong pain meds again but this time I am more aware of the implications of not being heard, and I hope that this is just a minor glitch in what has been a good recovery.

  2. allthingsspinal says:

    Hello Anne Marie – thank you for sharing your story here. It sounds quite similar to mine. I would not put excess worry into whether your CES has recurred – I don’t know what type of surgery you had but if it was done under the same principles as mine, the surgeon will have removed the inner jell of the disc and any bulging so that it can not happen again – this space is said to refill with scar tissue / cologen etc. The body does not just leave an empty space where none existed before. This new disc can be just as strong and supportive as any other in your spine.
    How long ago was your surgery?
    I had a few re-occurrences of back pain / spasm post surgery, in the short term and in the long term, when I pushed myself to hard, and I was also afraid that the CES was back, but it was not, just other less aggressive yet equally as scary episodes of pain / debilitation.
    Just remember – you won the Battle!! It is not always the same battle we fight, even though all war looks like war.
    Keep us posted, keep talking about it!

    BTW, you never said – did you make it to the alter?
    B

  3. Lee says:

    MY name is Lee I’m 42 and I was self employed for the last 13 years.
    I’m currently lying in bed back at my Mums (whom I have a pretty bad relationship) after having my CES operation at Oxfords JR 6 days ago.
    I’m here because I was googling why I feel so cold and can’t sleep, wondering if it was due to my nerve damage, it’s 04:17 😦

    I damaged my lower back at 26. Moving a photocopier, and then stupidly going off to play 5 a side football for an hour (yes I went in goal pretty quickly)
    I wasn’t earning a great wage at the time and went to A chairo finishing school because it was considerably less expensive. They would sort me out to a point I could still work (yes lifting office machines, not ideal but life goes on) and after a year, I was sort of ok about having sciatica (that seemed to shift from one side to other every 6 months or so)

    Then when I was 35 my ex GF came to my place after a Xmas party and was so wasted, she needed me to help clean her up and then put her to bed. She was small but dead weight. Anyway my back went bonkers. I was in the most agony I’d been (up to that point in my life) and bless, she had zero knowledge when she woke the next day…. which was nice 😦

    Anyway as I was 35 and by this point self employed (how’s a domestic appliance engineer as a correct career move from copiers? Doh!) I was aware of my mortality. So with the big 40 on the horizon, I knew I had to get myself sorted. (By this point I’m near 10 years with sciatica, still playing sports but ouch ouch)

    I find a local private back clinic and pay for 20 treatments of IDD (it’s a decompression therapy) at £90 a go and I must complete all within 30 days to gain full benefit. I also had to pay for my own MRI at a local University. About £300 subsidised by the clinic.
    This revealed an L4 bulge and L5 severe herniated disc and S1 issue (sorry I can’t exactly remember)
    Anyway, great news, after my 2nd session, my sciatica was gone. I completed the course, I did some of the physio (not enough in hindsight) And frankly after a decade, the relief was a miracle.

    I could tell my lower back was still not exactly correct but hey, I was about 90% better and I settled for that.
    I learnt how to adapt and used supports etc as and when I needed to lift a washing machine. I was now old enough to “retire” from local football and all was ok.

    This summer 2018 I found myself in a pickle financially and residentialy and decided (now 42) that I’d ask my family for some financial help to build a motorhome, so that one day before I was 50, I might be able to afford a real home. All of a sudden shared houses were so unattractive to me. So I relocated away from my work and life in Brighton UK and went home to Oxford. This meant that I still drove back 1 or 2 days a week to do some jobs (not ideal on so many levels but needs must) I was loaned a tiny city car for the 200 or so mile round trips. The build was a 7.5 t truck so not exactly a small project.

    Needles to say all of the building, driving and work, poor sleep, stress you name it, was making my back very upset. Within 3 weeks I had mild scitica again and I felt near suicidal (No joke) but kept my chin up and ploughed on for 3 months like this. Basically the journey could be 90 minutes or 4 hours one way. traffic depending. I seemed to have more of the worse journeys and so I found myself with very strong sciatica.

    After my truck was 80% complete, I just had to leave the family home for fear of going crazy. And so I set off back to Brighton to regain my life and save my business and sanity. Unfortunately after a week, it was clear I was in a great deal of discomfort and ended up spending 6 weeks unable to work, look after myself and self medicating ibuprofen-codeine and separately paracetamol. It got to the point, I was popping pills to go and buy more pills. I bought an inversion table and spent an hour over several goes in a day, various stretches and yoga moves I’d learnt through my experiences but alas, whatever I did made it more angry.

    Eventually I went to my GP who frankly laughed me out of the surgery (in hindsight I must have looked a mess or maybe even a junkie due to the codeine) then I called 111 and had some telephone advise…. to go to my GP 😉

    Oddly less than 30 minutes later my Mum called (I only answered cos I assumed they had called my next of kin, as I was clearly in a mess) it wasn’t but she stepped up and collected me in the night, got me back to hers and registered with a GP. Not before calling 111 and passing me the phone, I was honest with them and they insisted on calling me an ambulance due to me technically over dosed paracetamol. FFS!

    As you’d expect, the A+E dept told me off for wasting their time, and told me “unless you’re messing yourself and or have cancer, go home and grow up” so I did….
    By this time I had a numb right hand side and numb buttocks.

    2 weeks passed, some tramadol etc prescribed by GP.
    Anyway, I had a moment of clarity if you will on Friday where my sciatica came out of my lower leg (agony in the back of knee) and was half way through both hamstrings. I had maybe 12 hours of this and I was relieved. Anyway after a very tiny jerky step, bang!!!!! Oh boy I was in trouble…. (this is now Saturday early evening) the most peculiar pain in my balls and butt as well as back.

    I waited until 1st thing Sunday and was driven back to hospital. Basically it’s all a question of terminology. I called it numb but they wanted to hear pins and needles, I called in my right hand side, they wanted both sides. Anyway, I was under the MRI scanner in less than 40 minutes, I had a team debating my issue in front of me and stuff got serious very very quickly.
    (Ps I had now not pooped for a month! Yes a month! Yet my urine was slow but I emptied eventually, this was always mentioned but I believe my notes described me as a paracetamol od case, so I wasn’t taken very seriously)

    Anyway after the op, the Neuro surgeons seem very happy “textbook” I woke up Monday early hours sciatica was gone but I was very tender obviously.
    I had my cavater (sorry spelling) removed about 10 am and was aware of a numbness in what I now know as my saddle area. But still everyone seemed happy.

    I was discharged late Tuesday and after a great amount of pain and tears getting collected, driven home in rush hour and getting into a none medical bed. I thought I was doomed. Amazing the next morning how far I had come and to be fair each day has been giant leaps from the mess that left the hospital.

    Oh the poo? Ok so before I was allowed to go, I had to poop. I was given an enema and honestly I’ll never watch that sort of porn again, it was gigantic, I’d say 15 inches long and about 4 inches fat, yes I bled. And yesterday morning I spent 9.5 hours in the family bathroom trying to have poop number 2… I had to get my Mum (after a great deal of screaming and being called “ridiculous” to go to the local health centre and get me another enema. Sorry but it was also another terrifying ordeal, that I am happy to say, I was 100% confident of fully emptying. Let’s never talk about this aspect again, I have new respect for Elvis.

    Anyway this must be a very long account as it’s 0507 now although I’m typing on a smartphone…. my point I guess is that terminology is key into having the correct action from a health care person. I was fobbed off 3 or 4 times before I got the help I was so desperate for. Please remember to quote saddle and pins and needles, even if you may like to describe it as numb or dull ache or anything else.

    Also (sorry not my usual conversation) out of interest, today I successfully masturbated to conclusion. It wasn’t very nice if I’m honest, I was 90% hard and my money shot was unfulfilled although I did. I certainly didn’t have any kind of feeling of orgasm. I hope though, that this early is actually a great sign and with time and nerve repair I hope to make a full recovery. Shame I can’t be bothered again as I’d really like some sleep now. Ok maybe this helps someone? Good luck and I wish you all the best of luck with your recovery.

  4. allthingsspinal says:

    Hi Lee, I can’t believe I am only finding this now, 2 years later!! I have just found a bunch of comments hidden away that have been approved, although I have never seen them before so I don’t know who is approving them….
    So firstly, thank you for leaving your comment, thank you for the time that you took to share your story here, and I am sorry that it has taken this long for me to acknowledge you and to respond.
    Your story sounds very familiar to all of us I imagine, not being listened to, being misunderstood, mis-directed and mis-treated. The result, for us, is life changing.
    How are you doing now? How has your recovery been?
    I hope you are doing well!
    All the best,
    Brett

  5. Lee says:

    Hi Brett
    Yes it’s been 2 years and I’m very fortunate compared to countless stories I’ve read online in the 1st few weeks of recovery. I’m still living in my truck and I’m finally back to work. Due to the last. 2 or 3 years of zero work, I wasn’t eligible for any government hand outs to the self employed with regards to this Covid 19. So my luck hasn’t changed… I’m feeling fitter and stronger but still can’t feel my right foot as I should. It’s a frozen block mess but I gained foot eye coordination by playing football with a tennis ball against a big wall. I don’t walk with too many issues but I’ve never felt the confidence to be able to run etc. I tried to cycle and my ankle is still locked so my foot lifts off the pedal but definitely better.
    I saw a news bulletin on the BBC about 6 months ago stating the NHS had set aside many millions for misdiagnosed CES and I instructed a no win no fee company to act on my behalf. Unfortunately they recently told me that though I have a case, it would be too hard for them to assure a win and thus they ended their representation and closed the case. Just my luck. But I need to be grateful for the recovery as I said, I’ve read lots about people being in wheelchairs etc for many years. I was driving myself about locally after 4 weeks and able to shuffle about with my dog after a week.
    Good luck and hope you too are on the mend.
    Take care

    Lee

  6. I have had the discussed pain since before Christmas. My doctor canceled my appointment less than 24 hrs prior to my appointment of the 23rd of December. I was very upset. My lower back and sciatica pain had reached a very painful place. When I asked how soon I could get another appointment she said not until the 3rd week of January.
    I wanted to cry, I told her how much pain I was in. But that didn’t help. I changed PCP and got treated like I was the problem by the new doctor! It’s Feb. 24 and
    I’m still waiting. Bed ridden most every day.
    I’m still waiting on a procedure

  7. allthingsspinal says:

    Hello Elizabeth, I am very sorry to hear that you are in so much pain, and that you have been treated this way by the Medical Profession – it makes me so angry!! Hacing an appointment that is so important to you cancelled is terrible and unprofessional – surely you could have been passed on to someone else. May I ask where you are?
    How is your lower back and sciatic pain today?
    May I ask what PCP is? I looked it up on google and it comes up as Angel Dust 🙂
    Can you get more proactive in finding help? Maybe ring around other clinics and find someone who is sensitive to your needs? I know it is hard, but we can be so easily ignored and fobbed off into or out of the system.
    Do you have any bladder or bowel issues?
    Wishing you all the best, please feel free to message me and stay in touch,
    Brett

Leave a comment